Endometriosis as a Figure Athlete

BabsieGirl · 02-24-2004, 10:22 AM

Who gets endometriosis?

Endometriosis can affect any menstruating woman, from the time of her first period to menopause, regardless of whether or not she has children, her race or ethnicity, or her socio-economic status. Endometriosis can sometimes persist after menopause; or hormones taken for menopausal symptoms may cause the symptoms of endometriosis to continue.

Current estimates place the number of women with endometriosis between 2 percent and 10 percent of women of reproductive age. But, it’s important to note that these are only estimates, and that such statistics can vary widely.

BabsieGirl · 02-24-2004, 10:23 AM

Why does having endometriosis cause pain?

How endometriosis causes pain is the topic of much research. Because many women with endometriosis feel pain during or related to their periods, some researchers are focusing on the menstrual cycle in their search for answers about pain.

Normally, if a woman is not pregnant, her endometrial tissue builds up inside her uterus, breaks down into blood and tissue, and is shed as her menstrual flow or period. This cycle of growth and shedding happens every month or so.

The endometriosis areas growing outside the uterus also go through a similar cycle; they grow, break down into blood and tissue, and are shed once a month. But, because this tissue isn’t where it’s supposed to be, it can’t leave the body the way a woman’s period normally does. As part of this process, endometriosis areas make chemicals that may irritate the nearby tissue, as well as some other chemicals that are known to cause pain.

Over time, in the process of going through this monthly cycle, endometriosis areas can grow and become nodules or bumps on the surface of pelvic organs, or become cysts (fluid-filled sacs) in the ovaries. Sometimes the chemicals produced by the endometriosis can cause the organs in the pelvic area to scar, and even to scar together, so they appear as one large organ.

BabsieGirl · 02-24-2004, 10:23 AM

Is there a cure for endometriosis?

Currently, we have no cure for endometriosis. Even having a hysterectomy or removing the ovaries does not guarantee that the endometriosis areas and/or the symptoms of endometriosis will not come back.

BabsieGirl · 02-24-2004, 10:24 AM

This is soooooooooo freaky???????????????

I need to ask my doctor about this!!!

nikegurl · 02-24-2004, 10:31 AM

unfortunately, i believe it is true. my cousin's wife suffered from endo for many years before having a hysterectomy 4 years ago. she still has symptoms and some discomfort and her doctor told her that while it's not the norm...it's not unheard of.

however, the good news is she is drastically improved. it isn't entirely over but she isn't bedridden with pain anymore.

good luck today.

BabsieGirl · 02-24-2004, 10:50 AM

Quote:

she still has symptoms and some discomfort and her doctor told her that while it's not the norm...it's not unheard of.

Wow, that's comforting. NOT......

Did her doctor tell her why she's still having these symptoms? i mean, when they're out (since they were causing her problems and they're no longer there) you'd think she wouldn't have any pains, etc.....

Do you think the doctor removed all of her endo? Does she still go in for Laparascopies after the fact?

Quote:

however, the good news is she is drastically improved. it isn't entirely over but she isn't bedridden with pain anymore.

That is good news! Endo REALLY puts a lot of strain on relationships and our daily lives. It controls us ya know.

Sad, there isn't really a cure for it and the pain never stops, rather reduced.

Did your cousins wife chose Hormone Therapy first, or straigh up total removal?

Thank you for sharing NG. The more I hear, the more I start feeling a little better. Not totally better, but better knowing I have people to talk to about this. My husband isn't really comforting me the way I'd like. All I want to do is talk to him about this and explain how I feel. I want to "feel" he completely understands what's going to happen to me and my future. I just feel he doesn't care. Maybe I'm being a little sensitive cause I know men could care less about these sort of things, however, he's suppose to be my best friend. And, best friends are there for each other.

Thank you for listening.
Babs

nikegurl · 02-24-2004, 10:57 AM

i can ask her for you (i'm not sure on some of the details)

babsie - this is just a thought and i could be way off base. i hope you don't mind my speculating anyway....

your husband may not seem as supportive as you'd like out of frustration in his inability to "fix" it for you. i find sometimes guys seem cold or almost indifferent not because they don't care but because they feel overwhelmed by not being able to actually do anything about it. (when all we want is some comfort)

hang in there lady.

BabsieGirl · 02-24-2004, 11:27 AM

Aww, okay. Tell her if she doesn't want to share, that's okay and I understand

I don't mind you speculating at all hon. You're entitled to your opinion.

NG, thanks for turning my neg. thinking into something positive. I always think the worse when I should keep a positive attitude and I try really hard. Just this decision is so emotional for me, and maybe for my husband.

Should I ask him to share his thoughts with me?

nikegurl · 02-24-2004, 12:00 PM

how do you think things would go if you were to tell him you know he can't do anything to medically change your condition but a literal shoulder to lean on, a few extra hugs, maybe some additional help around the house (?), etc. would really help you out.

that way he knows in a concrete way what would help.

not sure about your hubbie but i know my ex really needed those kinds of specifics or he'd get all flustered and frustrated thinking he couldn't do anything at all if he couldn't solve the problem itself.

BabsieGirl · 02-25-2004, 08:40 AM

That's wonderful advice hon. Didn't get to use it last night because I was so upset after my appt and my experience with the pharmacy. So disturbing.

I'll try to use it tonight when I go home.

BabsieGirl · 02-25-2004, 08:41 AM

Stage I, or minimal endometriosis, involves small spots of endometriosis in the pelvis or the ovaries without scarring. There is little evidence that it causes infertility and there is no evidence that surgery is a cost effective treatment. The value of a laparoscopy to diagnose stage I endometriosis is debatable. Many patients conceive without treatment.

Stage II, or mild endometriosis, involves more extensive areas of endometriosis, often with "nodules" in the cul-de-sac on exam. The ovaries can be scarred to the sides of the pelvis making the ovaries immobile. A careful exam and vaginal ultrasound will usually make the diagnosis without surgery. Again, many patients conceive without surgical treatment but surgery can be helpful.

Stage III, or moderate endometriosis, has more scarring and/or endometriomas (collections of endometriosis in the ovaries). Vaginal ultrasound done in the first half of the cycle will detect endometriomas. The presence of an endometrioma is diagnostic for stage III or IV endometriosis. Surgical treatment is indicated.

Stage IV, or severe endometriosis, is like stage III but with either endometriomas in both ovaries, involvement of bowel and/or bladder or very extensive scarring. Surgery is needed for general health reasons. Often IVF will eventually be needed to achieve fertility to bypass the scarring.

Endometriosis and Tubal Disease
Endometriosis nearly always spares the fallopian tube. This allows the patient and physician to consider GIFT as a treatment option,except for Stage IV endometriosis. The presence of tubal damage, particularly hydrosalpinx indicates another problem--usually previous tubal infection. The best treatment for damaged tubes is IVF.

BabsieGirl · 02-25-2004, 08:42 AM

My doctors visit was soooooooo short. Maybe 10min, if that. The doctor came in, asked how I was doing, scurried through my chart then told me to follow him to another office cause he wanted to look something up. In their he told me I have stage IV Endo and an Endometrial Sac on my colon, asked if I wanted to have anymore children....I said no...........He asked, "how do you know?"......I said because my husband said we're done!..............I told him I wanted to go ahead and have a Hysterectomy.......he said he agreed and looked into my insurance...............what a crock of crap!!!!!!&(@)#$*@()#_$*&)#. My insurance says I have to be on Depro-Lupron for 3-6months before they'll cover a hysterectomy. I think they should say that if someone is at a 2 or low 3 stage, not a person who's at stage IV and counting. Stage IV is the LAST STAGE, there's no telling what will happen to me now....................So, after that my doctor gave me some more darvesets and a presciption for the injection......I go to the pharmacy and wait ONE HOUR for them to tell me my insurance won't cover the injection and they won't tell me why but if I wanted the injection I can pay $600.............I was so ticked off yesterday I was in tears all the way home which is an hour drive..........I went home...........told the family I loved'em, leave me alone for the evening and I'm going to bed with out dinner! I get to work today and go directly to the lady who went through exactly what I am.........She said we have another branch of health insurance that many of us do not know about and explained my injection is covered however my doctor has to order it through this company and they have to mail it to my doctor........Then I go in, get the shot and it's covered......................................

I'm scheduled to go in tomorrow to get my shot however, that's still up in the air as my doctor is arguing with my insurance at the moment.

BabsieGirl · 02-25-2004, 10:31 AM

Oh...MY MOM shows up at my appt. She's so anal.

it's annoying.

While we're both in the room waiting for the doctor my mom says, "Krystie, you really need to see an internist!" I tell her if she wants to be in the same room with me, I want no lectures.......She's great at ticking me off. Everything has got to be her way or she's not happy......So I reminded her that I'm the one who has been going through this pain for 14 years and seeing the same doctor for it. He knows my background ect...

We're sitting there and I tell her that I'm following through in getting the Hysterectomy.......She asks me, "Why, I thought you wanted to try for a little boy?" and that I should wait. So then I tell her my hubby doesn't want to have anymore, what am I suppose to do, go mess around so I can make her happy with another child? Then I explained how expensive it's going to be to send the girls off to college and by adding another body would only lessen their chances of going., etc........

So then she changes the subject by asking if I'm still working out. By that time, I was soooooo ready to ask her to leave. I wanted to say, "Mom, you're in the medical field, why are you asking me this question knowing I just had surgery?" I asked her why she asked that question.........She said, "Because you're getting fat!"

I wanted to just get up, walk out the doors, start bawling and never return to anyone. Instead I sucked it up, turned my head and told her my weight gain was due to all the hormones we've been playing with to get the endometriosis to SLOW OR STOP it from spreading.

I'm already freaking out because many women gain A LOT of weight when they get a hysterectomy. I know I'm strong and will work hard to keep all the weight off me but right now, there's nothing I can do because I'm not allowed to do anything

I just feel stuck................and now I'm depressed........I had myself geared up that if I do gain weight, it would be an even exchange to be pain free and well worth it to lead a normal life. I'm sure things are going to be a struggle at first, but once I get going, things have to change I just know it...........All this gain is water..........

Thanks you guys for listening. I'll let you know what the doc said about my injection.

Babs

BabsieGirl · 02-25-2004, 12:35 PM

Usually endometriosis is found in the pelvic area
It has been found on every pelvic organ, including the uterus (17-55% of women), ovaries (61-78%), tubes, ligaments, uterers, bowel, bladder
However, it can be found in anywhere in the body
**it has been found in the lungs, knees, nose, arms, brain

BabsieGirl · 02-25-2004, 03:43 PM

Okay gang.

I just got off the phone with my doctor and my "secondary" injectable pharmacy procare." Tomorrow on the 26th, I'm going in to get an injection of: Depro Lupron 3.75

Each month I will get the injection for 3 to 6 months. If they do not work (which I doubt they will as far into this as I am) then a Hysterectomy is needed. Which kind? I'm not sure.

Hang tight and I'll be back with some info on Lupron 3.75 Injections, etc.......

Babs

BabsieGirl · 02-25-2004, 04:12 PM

Depo Lupron

Depo Lupron is a long acting Lupron taking by injection once every 4 to 6 weeks. To down regulate the ovaries on a long term basis and is started on Day 21 of the cycle prior to the month down regulation is to be effective. This allows the ovaries to go into a resting phase similar to menopause to allow for exogenous control of hormones with drugs. In our program, Depo Lupron is used to down regulate potential recipients of donor eggs. This allows for maximum ability to synchronize with a prospective egg donor. Depo Lupron is also used to control endometriosis and to control irregular bleeding.

Side effects are similar to menopausal symptoms such as hot flashes, moodiness and sweating. These subside, but if they don't, your physician may prescribe some hormone replacement therapy to relieve hot flashes and prevent loss of bone density in long term use

BabsieGirl · 02-25-2004, 04:39 PM

what you should know about lupron depot.

1. Lupron Depot, a GnRH agonist, is effective for the treatment of endometriosis. After completing a maximum of 6 months of therapy, 96% of patients reported no painful periods (dysmenorrhea), 66% reported no pelvic tenderness, and 53% reported no pelvic pain.

2. Treatment with Lupron Depot lasts. Symptom relief can extend well beyond the treatment period for many women. In women who completed the
12-month follow-up after the end of Lupron Depot therapy, 76% of patients previously reporting painful sexual intercourse (dyspareunia) were still symptom-free. Of women who had pelvic tenderness before using Lupron Depot, 61% were symptom-free after a year. Over half the women with pelvic pain were symptom-free a year after Lupron Depot therapy.

3. Lupron Depot therapy can actually shrink the endometriotic implants that have been causing pain in your abdomen. In clinical studies, women with pelvic pain underwent diagnostic laparoscopy before and after they were treated with Lupron Depot for 6 months. In the women in whom surgeons could actually see endometriotic lesions and implants, the surgeons observed that a full course of Lupron Depot therapy had substantially reduced the size of the endometrial implants.

4. Many women with endometriosis experience pain relief within the first 3 months of Lupron Depot therapy. In order to determine whether or not Lupron Depot is going to work for you, your physician may recommend a trial of therapy for 3 months. Many patients can tell within that period of time whether or not Lupron Depot will work to control their pelvic pain. If it is working for you, your physician may have you complete the entire 6-month regimen. Treatment with Lupron Depot for 6 months has shown long-lasting symptom relief.

5. Just 6 months of therapy can mean years of pain relief. While a course of GnRH agonist therapy is for 6 months, many women report pain relief for up to 5 years after they have finished therapy. In fact, in one study, 63% of patients with mild disease reported being symptom-free 5 years after the end of GnRH agonist therapy,* and 26% of patients with severe disease reported being symptom-free.

*Drugs used in this study include:
Zoladex® (goserelin acetate implant), a registered trademark of Astra Zeneca Pharmaceuticals LP.
Synarel® (nafarelin acetate), a registered trademark of Pharmacia Corporation.
Suprefact® (buserelin acetate), a registered trademark of Aventis Pharmaceuticals.

6. If symptoms return, you can take a second 6-month course of Lupron Depot. If, after completing therapy, your pain returns, your doctor may prescribe Lupron Depot plus norethindrone acetate 5 mg daily for an additional 6 months. The benefits of add-back therapy can be a decrease in the frequency of hot flashes and a significant reduction of bone loss—in addition to the pain relief that Lupron Depot provides.

7. Lupron Depot is well tolerated. Lupron Depot, like any of the other drugs in its class that are used for endometriosis, works by putting your body into a temporary state of menopause, so most side effects of Lupron Depot therapy are similar to what women experience during menopause. These can include hot flashes, headaches, no periods, and vaginal dryness.

These symptoms are a result of a temporary state of menopause and are generally reversible after the drug is discontinued. Many patients have established ways of tolerating side effects, most notably hot flashes, in much the same way women going through the first stages of menopause have learned to cope with their symptoms. Examples include dressing in layers that can be easily removed, avoiding hot drinks and spicy foods that can trigger hot flashes, and using waterproof mascara to prevent makeup from running.

If you are concerned about hot flashes tell
your doctor. Your doctor may add norethindrone acetate 5 mg daily to your Lupron Depot therapy, which can reduce hot flashes while still maintaining Lupron Depot's efficacy.

Most common side effects with Lupron Depot are generally those related to hypoestrogenism, including vasomotor flushes, headaches, and vaginal dryness. A small amount of bone loss (average 3.2%) may also occur during therapy with Lupron Depot alone, but usually is partially or completely recovered after you stop taking Lupron Depot.

The most commonly reported side effects of Lupron Depot plus norethindrone acetate 5 mg daily were hot flashes, headache, nausea/vomiting, depression/emotional lability, and asthenia. In addition, Lupron Depot plus norethindrone acetate–treated patients had significantly decreased HDL levels and significantly increased LDL/HDL ratios. After treatment, mean serum lipid levels from patients with follow-up data returned to pretreatment values. Norethindrone acetate should be used with caution in women with cardiovascular risk factors including lipid abnormalities and cigarette smoking. Refer to the norethindrone acetate prescribing information for warnings, precautions, contraindications and adverse reactions.

BabsieGirl · 02-26-2004, 11:34 AM

My appt time is 3:30 so I'll let you all know how it goes tomorrow.

Vieope · 02-26-2004, 12:05 PM

Good to know that you are a strong woman and will overcome the current problem.

BabsieGirl · 02-26-2004, 12:33 PM

Thanks V, I'm trying really hard to keep a positive view point. It's hard believe me, it's hard!

Thank you for visiting bud

BabsieGirl · 02-27-2004, 09:47 AM

Okay,

Yesterday I went to my gyno to get the Lupron Injection. Didn't hurt at all.

So far, I'm not experiencing anything other than pain in my hip from where I got the injection. Which I'm assuming is normal and will subside shortly. The site is tender to touch.

Still have cramping, which will HOPEFULLY stop after the first 30 days are up.

My doctor said none of his patients experienced weight gain.

BabsieGirl · 02-27-2004, 09:53 AM

What should I expect?

At first, your estrogen level will increase for one o two weeks. during that time, you may notice an increase iin your current symptoms. Then these hormones will decline to levels similar to those in menopausal women.

Therefore, the most common side effects of LUPRON DEPOT 3.75mg include:

Hot Flashs
Vaginal Dryness
Headaches
Changes in Mood
Decreased Interest in Sex

Your Mentrual periods will probably become less regular and the flow may be heavier or lighter. After a few months of therapy your periods may stop completely.

BabsieGirl · 02-27-2004, 09:59 AM

When you take LUPRON DEPOT 3.75mg, your hormone levels are decreased to menopausal levels or lower. This low level can result in thinning of the bones, which may not be completely reversible in some patients. There are certain conditions that may increase the possibility of the thinning of your bones when you take a drug such as LUPRON DEPOT 3.75mg. They are:

*Excessive use of alcohol
*Smoking
*Family history of Osteoporosis (thinning of the bones with fractures)
*Taking other medications that can cause thinning of the bones

If your symptoms returna fter treatment is finished and repeated treatment is desired, you will need co-treatment with LUPRON DEPOT 3.75mg and NORETHINDRONE ACETATE. Your health care provider should assess your bone density at this time. Be sure to discuss this with your health care provider.

Co-treatment with LUPRON DEPOT 3.75mg AND NORETHINDRONE ACETATE has not been studied for treatment of fibroids.

02-24-2004, 10:22 AM	#31
BabsieGirl Fighting Endometriosis Join Date: Sep 2003 Posts: 7,495	Who get Endometriosis Who gets endometriosis? Endometriosis can affect any menstruating woman, from the time of her first period to menopause, regardless of whether or not she has children, her race or ethnicity, or her socio-economic status. Endometriosis can sometimes persist after menopause; or hormones taken for menopausal symptoms may cause the symptoms of endometriosis to continue. Current estimates place the number of women with endometriosis between 2 percent and 10 percent of women of reproductive age. But, it’s important to note that these are only estimates, and that such statistics can vary widely.
	Don't hate the player, hate the game!http://pages.prodigy.net/rogerlori1/...the%20wave.GIF Before you talk about what you want - appreciate what you have. http://home.earthlink.net/~gwcaton/s...ctures/tmf.jpg A good marriage would be between a blind wife and a deaf husband. -Honore de Balzac Desire+Consistency='s RESULTS

02-24-2004, 10:23 AM	#32
BabsieGirl Fighting Endometriosis Join Date: Sep 2003 Posts: 7,495	Why does having Endometriosis cause so much pain? Why does having endometriosis cause pain? How endometriosis causes pain is the topic of much research. Because many women with endometriosis feel pain during or related to their periods, some researchers are focusing on the menstrual cycle in their search for answers about pain. Normally, if a woman is not pregnant, her endometrial tissue builds up inside her uterus, breaks down into blood and tissue, and is shed as her menstrual flow or period. This cycle of growth and shedding happens every month or so. The endometriosis areas growing outside the uterus also go through a similar cycle; they grow, break down into blood and tissue, and are shed once a month. But, because this tissue isn’t where it’s supposed to be, it can’t leave the body the way a woman’s period normally does. As part of this process, endometriosis areas make chemicals that may irritate the nearby tissue, as well as some other chemicals that are known to cause pain. Over time, in the process of going through this monthly cycle, endometriosis areas can grow and become nodules or bumps on the surface of pelvic organs, or become cysts (fluid-filled sacs) in the ovaries. Sometimes the chemicals produced by the endometriosis can cause the organs in the pelvic area to scar, and even to scar together, so they appear as one large organ.
	Don't hate the player, hate the game!http://pages.prodigy.net/rogerlori1/...the%20wave.GIF Before you talk about what you want - appreciate what you have. http://home.earthlink.net/~gwcaton/s...ctures/tmf.jpg A good marriage would be between a blind wife and a deaf husband. -Honore de Balzac Desire+Consistency='s RESULTS

02-24-2004, 10:23 AM	#33
BabsieGirl Fighting Endometriosis Join Date: Sep 2003 Posts: 7,495	Is there a cure? Is there a cure for endometriosis? Currently, we have no cure for endometriosis. Even having a hysterectomy or removing the ovaries does not guarantee that the endometriosis areas and/or the symptoms of endometriosis will not come back.
	Don't hate the player, hate the game!http://pages.prodigy.net/rogerlori1/...the%20wave.GIF Before you talk about what you want - appreciate what you have. http://home.earthlink.net/~gwcaton/s...ctures/tmf.jpg A good marriage would be between a blind wife and a deaf husband. -Honore de Balzac Desire+Consistency='s RESULTS

02-24-2004, 10:24 AM	#34
BabsieGirl Fighting Endometriosis Join Date: Sep 2003 Posts: 7,495	This is soooooooooo freaky??????????????? I need to ask my doctor about this!!!
	Don't hate the player, hate the game!http://pages.prodigy.net/rogerlori1/...the%20wave.GIF Before you talk about what you want - appreciate what you have. http://home.earthlink.net/~gwcaton/s...ctures/tmf.jpg A good marriage would be between a blind wife and a deaf husband. -Honore de Balzac Desire+Consistency='s RESULTS

02-24-2004, 10:31 AM	#35
nikegurl Registered User Join Date: Mar 2002 Location: LA, CA Posts: 5,635	unfortunately, i believe it is true. my cousin's wife suffered from endo for many years before having a hysterectomy 4 years ago. she still has symptoms and some discomfort and her doctor told her that while it's not the norm...it's not unheard of. however, the good news is she is drastically improved. it isn't entirely over but she isn't bedridden with pain anymore. good luck today.
	If you want to achieve things that others can't... You have to do things that others won't.

02-24-2004, 10:57 AM	#37
nikegurl Registered User Join Date: Mar 2002 Location: LA, CA Posts: 5,635	i can ask her for you (i'm not sure on some of the details) babsie - this is just a thought and i could be way off base. i hope you don't mind my speculating anyway.... your husband may not seem as supportive as you'd like out of frustration in his inability to "fix" it for you. i find sometimes guys seem cold or almost indifferent not because they don't care but because they feel overwhelmed by not being able to actually do anything about it. (when all we want is some comfort) hang in there lady.
	If you want to achieve things that others can't... You have to do things that others won't.

02-24-2004, 11:27 AM	#38
BabsieGirl Fighting Endometriosis Join Date: Sep 2003 Posts: 7,495	Aww, okay. Tell her if she doesn't want to share, that's okay and I understand I don't mind you speculating at all hon. You're entitled to your opinion. NG, thanks for turning my neg. thinking into something positive. I always think the worse when I should keep a positive attitude and I try really hard. Just this decision is so emotional for me, and maybe for my husband. Should I ask him to share his thoughts with me?
	Don't hate the player, hate the game!http://pages.prodigy.net/rogerlori1/...the%20wave.GIF Before you talk about what you want - appreciate what you have. http://home.earthlink.net/~gwcaton/s...ctures/tmf.jpg A good marriage would be between a blind wife and a deaf husband. -Honore de Balzac Desire+Consistency='s RESULTS

02-24-2004, 12:00 PM	#39
nikegurl Registered User Join Date: Mar 2002 Location: LA, CA Posts: 5,635	how do you think things would go if you were to tell him you know he can't do anything to medically change your condition but a literal shoulder to lean on, a few extra hugs, maybe some additional help around the house (?), etc. would really help you out. that way he knows in a concrete way what would help. not sure about your hubbie but i know my ex really needed those kinds of specifics or he'd get all flustered and frustrated thinking he couldn't do anything at all if he couldn't solve the problem itself.
	If you want to achieve things that others can't... You have to do things that others won't.

02-25-2004, 08:40 AM	#40
BabsieGirl Fighting Endometriosis Join Date: Sep 2003 Posts: 7,495	That's wonderful advice hon. Didn't get to use it last night because I was so upset after my appt and my experience with the pharmacy. So disturbing. I'll try to use it tonight when I go home.
	Don't hate the player, hate the game!http://pages.prodigy.net/rogerlori1/...the%20wave.GIF Before you talk about what you want - appreciate what you have. http://home.earthlink.net/~gwcaton/s...ctures/tmf.jpg A good marriage would be between a blind wife and a deaf husband. -Honore de Balzac Desire+Consistency='s RESULTS

02-25-2004, 08:41 AM	#41
BabsieGirl Fighting Endometriosis Join Date: Sep 2003 Posts: 7,495	What are the stages of Endometriosis? Stage I, or minimal endometriosis, involves small spots of endometriosis in the pelvis or the ovaries without scarring. There is little evidence that it causes infertility and there is no evidence that surgery is a cost effective treatment. The value of a laparoscopy to diagnose stage I endometriosis is debatable. Many patients conceive without treatment. Stage II, or mild endometriosis, involves more extensive areas of endometriosis, often with "nodules" in the cul-de-sac on exam. The ovaries can be scarred to the sides of the pelvis making the ovaries immobile. A careful exam and vaginal ultrasound will usually make the diagnosis without surgery. Again, many patients conceive without surgical treatment but surgery can be helpful. Stage III, or moderate endometriosis, has more scarring and/or endometriomas (collections of endometriosis in the ovaries). Vaginal ultrasound done in the first half of the cycle will detect endometriomas. The presence of an endometrioma is diagnostic for stage III or IV endometriosis. Surgical treatment is indicated. Stage IV, or severe endometriosis, is like stage III but with either endometriomas in both ovaries, involvement of bowel and/or bladder or very extensive scarring. Surgery is needed for general health reasons. Often IVF will eventually be needed to achieve fertility to bypass the scarring. Endometriosis and Tubal Disease Endometriosis nearly always spares the fallopian tube. This allows the patient and physician to consider GIFT as a treatment option,except for Stage IV endometriosis. The presence of tubal damage, particularly hydrosalpinx indicates another problem--usually previous tubal infection. The best treatment for damaged tubes is IVF.
	Don't hate the player, hate the game!http://pages.prodigy.net/rogerlori1/...the%20wave.GIF Before you talk about what you want - appreciate what you have. http://home.earthlink.net/~gwcaton/s...ctures/tmf.jpg A good marriage would be between a blind wife and a deaf husband. -Honore de Balzac Desire+Consistency='s RESULTS

02-25-2004, 08:42 AM	#42
BabsieGirl Fighting Endometriosis Join Date: Sep 2003 Posts: 7,495	Feb 24th Follow Up Visit My doctors visit was soooooooo short. Maybe 10min, if that. The doctor came in, asked how I was doing, scurried through my chart then told me to follow him to another office cause he wanted to look something up. In their he told me I have stage IV Endo and an Endometrial Sac on my colon, asked if I wanted to have anymore children....I said no...........He asked, "how do you know?"......I said because my husband said we're done!..............I told him I wanted to go ahead and have a Hysterectomy.......he said he agreed and looked into my insurance...............what a crock of crap!!!!!!&(@)#$@()#_$&)#. My insurance says I have to be on Depro-Lupron for 3-6months before they'll cover a hysterectomy. I think they should say that if someone is at a 2 or low 3 stage, not a person who's at stage IV and counting. Stage IV is the LAST STAGE, there's no telling what will happen to me now....................So, after that my doctor gave me some more darvesets and a presciption for the injection......I go to the pharmacy and wait ONE HOUR for them to tell me my insurance won't cover the injection and they won't tell me why but if I wanted the injection I can pay $600.............I was so ticked off yesterday I was in tears all the way home which is an hour drive..........I went home...........told the family I loved'em, leave me alone for the evening and I'm going to bed with out dinner! I get to work today and go directly to the lady who went through exactly what I am.........She said we have another branch of health insurance that many of us do not know about and explained my injection is covered however my doctor has to order it through this company and they have to mail it to my doctor........Then I go in, get the shot and it's covered...................................... I'm scheduled to go in tomorrow to get my shot however, that's still up in the air as my doctor is arguing with my insurance at the moment. Last edited by BabsieGirl : 02-25-2004 at 10:14 AM.
	Don't hate the player, hate the game!http://pages.prodigy.net/rogerlori1/...the%20wave.GIF Before you talk about what you want - appreciate what you have. http://home.earthlink.net/~gwcaton/s...ctures/tmf.jpg A good marriage would be between a blind wife and a deaf husband. -Honore de Balzac Desire+Consistency='s RESULTS

02-25-2004, 10:31 AM	#43
BabsieGirl Fighting Endometriosis Join Date: Sep 2003 Posts: 7,495	Oh...MY MOM shows up at my appt. She's so anal. it's annoying. While we're both in the room waiting for the doctor my mom says, "Krystie, you really need to see an internist!" I tell her if she wants to be in the same room with me, I want no lectures.......She's great at ticking me off. Everything has got to be her way or she's not happy......So I reminded her that I'm the one who has been going through this pain for 14 years and seeing the same doctor for it. He knows my background ect... We're sitting there and I tell her that I'm following through in getting the Hysterectomy.......She asks me, "Why, I thought you wanted to try for a little boy?" and that I should wait. So then I tell her my hubby doesn't want to have anymore, what am I suppose to do, go mess around so I can make her happy with another child? Then I explained how expensive it's going to be to send the girls off to college and by adding another body would only lessen their chances of going., etc........ So then she changes the subject by asking if I'm still working out. By that time, I was soooooo ready to ask her to leave. I wanted to say, "Mom, you're in the medical field, why are you asking me this question knowing I just had surgery?" I asked her why she asked that question.........She said, "Because you're getting fat!" I wanted to just get up, walk out the doors, start bawling and never return to anyone. Instead I sucked it up, turned my head and told her my weight gain was due to all the hormones we've been playing with to get the endometriosis to SLOW OR STOP it from spreading. I'm already freaking out because many women gain A LOT of weight when they get a hysterectomy. I know I'm strong and will work hard to keep all the weight off me but right now, there's nothing I can do because I'm not allowed to do anything I just feel stuck................and now I'm depressed........I had myself geared up that if I do gain weight, it would be an even exchange to be pain free and well worth it to lead a normal life. I'm sure things are going to be a struggle at first, but once I get going, things have to change I just know it...........All this gain is water.......... Thanks you guys for listening. I'll let you know what the doc said about my injection. Babs
	Don't hate the player, hate the game!http://pages.prodigy.net/rogerlori1/...the%20wave.GIF Before you talk about what you want - appreciate what you have. http://home.earthlink.net/~gwcaton/s...ctures/tmf.jpg A good marriage would be between a blind wife and a deaf husband. -Honore de Balzac Desire+Consistency='s RESULTS

02-25-2004, 12:35 PM	#44
BabsieGirl Fighting Endometriosis Join Date: Sep 2003 Posts: 7,495	Where is Endometriosis Found in the Body? Usually endometriosis is found in the pelvic area It has been found on every pelvic organ, including the uterus (17-55% of women), ovaries (61-78%), tubes, ligaments, uterers, bowel, bladder However, it can be found in anywhere in the body **it has been found in the lungs, knees, nose, arms, brain
	Don't hate the player, hate the game!http://pages.prodigy.net/rogerlori1/...the%20wave.GIF Before you talk about what you want - appreciate what you have. http://home.earthlink.net/~gwcaton/s...ctures/tmf.jpg A good marriage would be between a blind wife and a deaf husband. -Honore de Balzac Desire+Consistency='s RESULTS

02-25-2004, 03:43 PM	#45
BabsieGirl Fighting Endometriosis Join Date: Sep 2003 Posts: 7,495	Feb 26th Visit Okay gang. I just got off the phone with my doctor and my "secondary" injectable pharmacy procare." Tomorrow on the 26th, I'm going in to get an injection of: Depro Lupron 3.75 Each month I will get the injection for 3 to 6 months. If they do not work (which I doubt they will as far into this as I am) then a Hysterectomy is needed. Which kind? I'm not sure. Hang tight and I'll be back with some info on Lupron 3.75 Injections, etc....... Babs
	Don't hate the player, hate the game!http://pages.prodigy.net/rogerlori1/...the%20wave.GIF Before you talk about what you want - appreciate what you have. http://home.earthlink.net/~gwcaton/s...ctures/tmf.jpg A good marriage would be between a blind wife and a deaf husband. -Honore de Balzac Desire+Consistency='s RESULTS

02-25-2004, 04:12 PM	#46
BabsieGirl Fighting Endometriosis Join Date: Sep 2003 Posts: 7,495	Depo Lupron 3.75 Depo Lupron Depo Lupron is a long acting Lupron taking by injection once every 4 to 6 weeks. To down regulate the ovaries on a long term basis and is started on Day 21 of the cycle prior to the month down regulation is to be effective. This allows the ovaries to go into a resting phase similar to menopause to allow for exogenous control of hormones with drugs. In our program, Depo Lupron is used to down regulate potential recipients of donor eggs. This allows for maximum ability to synchronize with a prospective egg donor. Depo Lupron is also used to control endometriosis and to control irregular bleeding. Side effects are similar to menopausal symptoms such as hot flashes, moodiness and sweating. These subside, but if they don't, your physician may prescribe some hormone replacement therapy to relieve hot flashes and prevent loss of bone density in long term use
	Don't hate the player, hate the game!http://pages.prodigy.net/rogerlori1/...the%20wave.GIF Before you talk about what you want - appreciate what you have. http://home.earthlink.net/~gwcaton/s...ctures/tmf.jpg A good marriage would be between a blind wife and a deaf husband. -Honore de Balzac Desire+Consistency='s RESULTS

02-25-2004, 04:39 PM	#47
BabsieGirl Fighting Endometriosis Join Date: Sep 2003 Posts: 7,495	More about Lupron 3.75 what you should know about lupron depot. 1. Lupron Depot, a GnRH agonist, is effective for the treatment of endometriosis. After completing a maximum of 6 months of therapy, 96% of patients reported no painful periods (dysmenorrhea), 66% reported no pelvic tenderness, and 53% reported no pelvic pain. 2. Treatment with Lupron Depot lasts. Symptom relief can extend well beyond the treatment period for many women. In women who completed the 12-month follow-up after the end of Lupron Depot therapy, 76% of patients previously reporting painful sexual intercourse (dyspareunia) were still symptom-free. Of women who had pelvic tenderness before using Lupron Depot, 61% were symptom-free after a year. Over half the women with pelvic pain were symptom-free a year after Lupron Depot therapy. 3. Lupron Depot therapy can actually shrink the endometriotic implants that have been causing pain in your abdomen. In clinical studies, women with pelvic pain underwent diagnostic laparoscopy before and after they were treated with Lupron Depot for 6 months. In the women in whom surgeons could actually see endometriotic lesions and implants, the surgeons observed that a full course of Lupron Depot therapy had substantially reduced the size of the endometrial implants. 4. Many women with endometriosis experience pain relief within the first 3 months of Lupron Depot therapy. In order to determine whether or not Lupron Depot is going to work for you, your physician may recommend a trial of therapy for 3 months. Many patients can tell within that period of time whether or not Lupron Depot will work to control their pelvic pain. If it is working for you, your physician may have you complete the entire 6-month regimen. Treatment with Lupron Depot for 6 months has shown long-lasting symptom relief. 5. Just 6 months of therapy can mean years of pain relief. While a course of GnRH agonist therapy is for 6 months, many women report pain relief for up to 5 years after they have finished therapy. In fact, in one study, 63% of patients with mild disease reported being symptom-free 5 years after the end of GnRH agonist therapy,* and 26% of patients with severe disease reported being symptom-free. *Drugs used in this study include: Zoladex® (goserelin acetate implant), a registered trademark of Astra Zeneca Pharmaceuticals LP. Synarel® (nafarelin acetate), a registered trademark of Pharmacia Corporation. Suprefact® (buserelin acetate), a registered trademark of Aventis Pharmaceuticals. 6. If symptoms return, you can take a second 6-month course of Lupron Depot. If, after completing therapy, your pain returns, your doctor may prescribe Lupron Depot plus norethindrone acetate 5 mg daily for an additional 6 months. The benefits of add-back therapy can be a decrease in the frequency of hot flashes and a significant reduction of bone loss—in addition to the pain relief that Lupron Depot provides. 7. Lupron Depot is well tolerated. Lupron Depot, like any of the other drugs in its class that are used for endometriosis, works by putting your body into a temporary state of menopause, so most side effects of Lupron Depot therapy are similar to what women experience during menopause. These can include hot flashes, headaches, no periods, and vaginal dryness. These symptoms are a result of a temporary state of menopause and are generally reversible after the drug is discontinued. Many patients have established ways of tolerating side effects, most notably hot flashes, in much the same way women going through the first stages of menopause have learned to cope with their symptoms. Examples include dressing in layers that can be easily removed, avoiding hot drinks and spicy foods that can trigger hot flashes, and using waterproof mascara to prevent makeup from running. If you are concerned about hot flashes tell your doctor. Your doctor may add norethindrone acetate 5 mg daily to your Lupron Depot therapy, which can reduce hot flashes while still maintaining Lupron Depot's efficacy. Most common side effects with Lupron Depot are generally those related to hypoestrogenism, including vasomotor flushes, headaches, and vaginal dryness. A small amount of bone loss (average 3.2%) may also occur during therapy with Lupron Depot alone, but usually is partially or completely recovered after you stop taking Lupron Depot. The most commonly reported side effects of Lupron Depot plus norethindrone acetate 5 mg daily were hot flashes, headache, nausea/vomiting, depression/emotional lability, and asthenia. In addition, Lupron Depot plus norethindrone acetate–treated patients had significantly decreased HDL levels and significantly increased LDL/HDL ratios. After treatment, mean serum lipid levels from patients with follow-up data returned to pretreatment values. Norethindrone acetate should be used with caution in women with cardiovascular risk factors including lipid abnormalities and cigarette smoking. Refer to the norethindrone acetate prescribing information for warnings, precautions, contraindications and adverse reactions.
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02-26-2004, 11:34 AM	#48
BabsieGirl Fighting Endometriosis Join Date: Sep 2003 Posts: 7,495	My appt time is 3:30 so I'll let you all know how it goes tomorrow.
	Don't hate the player, hate the game!http://pages.prodigy.net/rogerlori1/...the%20wave.GIF Before you talk about what you want - appreciate what you have. http://home.earthlink.net/~gwcaton/s...ctures/tmf.jpg A good marriage would be between a blind wife and a deaf husband. -Honore de Balzac Desire+Consistency='s RESULTS

02-26-2004, 12:05 PM	#49
Vieope Monochromatic Bunny Join Date: Oct 2003 Location: drinking coffee.. Posts: 14,867 Photos: 10	Good to know that you are a strong woman and will overcome the current problem.
	FURtherness

02-26-2004, 12:33 PM	#50
BabsieGirl Fighting Endometriosis Join Date: Sep 2003 Posts: 7,495	Thanks V, I'm trying really hard to keep a positive view point. It's hard believe me, it's hard! Thank you for visiting bud
	Don't hate the player, hate the game!http://pages.prodigy.net/rogerlori1/...the%20wave.GIF Before you talk about what you want - appreciate what you have. http://home.earthlink.net/~gwcaton/s...ctures/tmf.jpg A good marriage would be between a blind wife and a deaf husband. -Honore de Balzac Desire+Consistency='s RESULTS

02-27-2004, 09:47 AM	#51
BabsieGirl Fighting Endometriosis Join Date: Sep 2003 Posts: 7,495	Feb 26th appt, Cont'd Okay, Yesterday I went to my gyno to get the Lupron Injection. Didn't hurt at all. So far, I'm not experiencing anything other than pain in my hip from where I got the injection. Which I'm assuming is normal and will subside shortly. The site is tender to touch. Still have cramping, which will HOPEFULLY stop after the first 30 days are up. My doctor said none of his patients experienced weight gain.
	Don't hate the player, hate the game!http://pages.prodigy.net/rogerlori1/...the%20wave.GIF Before you talk about what you want - appreciate what you have. http://home.earthlink.net/~gwcaton/s...ctures/tmf.jpg A good marriage would be between a blind wife and a deaf husband. -Honore de Balzac Desire+Consistency='s RESULTS

02-27-2004, 09:53 AM	#52
BabsieGirl Fighting Endometriosis Join Date: Sep 2003 Posts: 7,495	What can I expect after the Injection? What should I expect? At first, your estrogen level will increase for one o two weeks. during that time, you may notice an increase iin your current symptoms. Then these hormones will decline to levels similar to those in menopausal women. Therefore, the most common side effects of LUPRON DEPOT 3.75mg include: Hot Flashs Vaginal Dryness Headaches Changes in Mood Decreased Interest in Sex Your Mentrual periods will probably become less regular and the flow may be heavier or lighter. After a few months of therapy your periods may stop completely.
	Don't hate the player, hate the game!http://pages.prodigy.net/rogerlori1/...the%20wave.GIF Before you talk about what you want - appreciate what you have. http://home.earthlink.net/~gwcaton/s...ctures/tmf.jpg A good marriage would be between a blind wife and a deaf husband. -Honore de Balzac Desire+Consistency='s RESULTS

02-27-2004, 09:59 AM	#53
BabsieGirl Fighting Endometriosis Join Date: Sep 2003 Posts: 7,495	What is the most IMPORTANT RISK of taking LUPRON? When you take LUPRON DEPOT 3.75mg, your hormone levels are decreased to menopausal levels or lower. This low level can result in thinning of the bones, which may not be completely reversible in some patients. There are certain conditions that may increase the possibility of the thinning of your bones when you take a drug such as LUPRON DEPOT 3.75mg. They are: Excessive use of alcohol Smoking Family history of Osteoporosis (thinning of the bones with fractures) Taking other medications that can cause thinning of the bones If your symptoms returna fter treatment is finished and repeated treatment is desired, you will need co-treatment with LUPRON DEPOT 3.75mg and NORETHINDRONE ACETATE. Your health care provider should assess your bone density at this time. Be sure to discuss this with your health care provider. Co-treatment with LUPRON DEPOT 3.75mg AND NORETHINDRONE ACETATE has not been studied for treatment of fibroids.
	Don't hate the player, hate the game!http://pages.prodigy.net/rogerlori1/...the%20wave.GIF Before you talk about what you want - appreciate what you have. http://home.earthlink.net/~gwcaton/s...ctures/tmf.jpg A good marriage would be between a blind wife and a deaf husband. -Honore de Balzac Desire+C