Damn, that is some bad news, but I would get a second opinion. You also may have to lay off for awhile, at least the squats and deadlifts. I had to slightly hearniated discs a few years back, and was told that 90% percent of the time they will heal, mine did after a year. There are also some suppliments that are supposed to promote joint health, sorry can't think of the names right now.
I don't know much about spinal biffida, but there was a light-weight power lifting champion that had scoliosis pretty bad, and didn't even know it, his name was Lamar Gant if I remember correctly, he could deadlift with an incredible amount of weight for his weight class.
I know you can build some pretty good legs without using weights, look at some of those bike riders.
Just some thoughts, and I may be way off here, but some food for thought. Good luck, and I wish you well.
Jim




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